Sunday 13 September 2015

Why #ChallengeMS - My Story

If you go to their website the MS Society summarise quite neatly why #ChallengeMS is so important.

For me, it's personal; so I thought I'd share a bit of my story and experiences.

There is no cure for MS, there are disease modifying therapies available, but there is no cure. Let's face it, science isn't even sure what causes it. Is it genetic? Is it triggered by an innocuous disease? Is it lack of Vitamin D? Could it be a combination of some and/or all of these things?

I was diagnosed with MS back around 2001/2002. I'd had several bouts of Optic Neuritis (I still suffer this and have just finished a combative course of steroids). Optic Neuritis is an inflammation of the optic nerve. It sometimes causes pain behind the affected eye, but more obviously causes visual disturbances. 

The next problems were pins and needles in my hands and legs; always exacerbated by activity and not enough rest. The pins and needles were joined by general muscle weakness which made gripping things, picking things up and writing harder.

The sensory disturbances developed into balance difficulties. Sometimes I had vertigo, most often I just wobbled. My legs didn't have as much strength. I worked through using a walking stick to crutches and now my wheelie-walker.

All of this happened quite gradually over the last dozen years, which means if nothing else I can adapt to the way my body does (or doesn't) work.

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Wet weather

#ChallengeMS 2014